The purpose of this study is to evaluate treatment adherence among patients followed in the Department of Inherited Metabolic Diseases at Necker Hospital, in order to assess the need for implementing a therapeutic education workshop focused on medication adherence.
All patients followed in the Hereditary Metabolic Diseases department of Necker Hospital during their visit to the department for their usual care and having a specific daily oral medication treatment.
Children aged at least 7 years and adolescents/young adults
Holders of parental authority and children or adolescents or adults' patients informed and consenting to participate in the study
Metabolic disease without oral medication (intravenous treatments, amino acid mixtures, and dietary regimens are not evaluated).
Patient and parents not proficient in French.
Refusal by the patient's holders of parental authority or adult patient to participate in the study and/or refusal of the child/adolescent.
Assistance Publique - Hôpitaux de Paris
Lead sponsor
URC-CIC Paris Descartes Necker Cochin
Collaborator