Information Sources in Pulmonary Hypertension
Trial statusNot yet recruiting
Trial phaseNot listed
Trial typeObservational
Biological sexAll
Age18+
SponsorUniversity of Sao Paulo General Hospital
About this trial
Pulmonary hypertension is a serious disease that affects patients' health, daily life, and emotional well-being. Many patients and their caregivers actively look for information to better understand the condition and its treatment. However, the quality of information found in different sources, such as the internet, social media, health professionals, and patient groups, can vary.
This study will use a short questionnaire to learn where patients and caregivers search for information, what topics they look for, how satisfied they are with what they find, and which sources they trust most. The results will help improve communication strategies, educational materials, and support programs for people living with pulmonary hypertension and their families.
Eligibility criteria
This trial does not accept healthy volunteersQualifiers
Age ≥ 18 years
Confirmed diagnosis of pulmonary hypertension (any clinical group) or informal caregiver of a patient with pulmonary hypertension
Ability to read and understand the questionnaire
Signed informed consent (ICF/TCLE)
Disqualifiers
Inability to understand or complete the questionnaire
Refusal to participate or not signing the informed consent
Trial population
Adults with a confirmed diagnosis of pulmonary hypertension and their informal caregivers (family members or non-professional supporters), recruited from a specialized center in Brazil.
Trial design
Design model
Other
Time perspective
Prospective
Treatments tested in this trial
Not listed
Trial groups
100 Participants
are grouped into 2 trial groupsGroup A: Patients With Pulmonary Hypertension
Group B: Informal Caregivers of Pulmonary Hypertension Patients
Trial outcomes
Primary outcomes
1
Main Sources of Health Information
Identification of the primary sources of information used by patients with pulmonary hypertension and their informal caregivers, as reported in the structured questionnaire.
Time frame
Up to 12 months after study startSecondary outcomes
1
Satisfaction With Health Information
Level of satisfaction with the health information found, measured on a 5-point Likert scale (1 = not satisfied, 5 = very satisfied).
Time frame
Up to 12 months after study start2
Confidence in Finding Information
Degree of confidence when searching for information, measured on a 5-point Likert scale (1 = not confident, 5 = very confident).
Time frame
Up to 12 months after study start3
Frequency of Conflicting Information
Proportion of participants reporting that they found contradictory or inconsistent health information related to pulmonary hypertension.
Time frame
Up to 12 months after study start4
Most Frequently Searched Topics
Distribution of the main topics searched (e.g., treatments, prognosis, daily care, rights/benefits) as reported in the questionnaire.
Time frame
Up to 12 months after study startSponsors and contacts
Click on the lead sponsor to view all of their trials.
Source ClinicalTrials.gov
This trial is not recruiting at the moment. You can still explore other options: