Phase 4 of Designed With You
ConditionDisability Physical
Trial statusRecruiting
Trial phaseNot applicable
Trial typeInterventional
Biological sexAll
Age18+
SponsorJohns Hopkins University
About this trial
The purpose of this study is to provide evaluate the feasibility of a structured 8-10-week, multi-component intervention that integrates individualized resource navigation, personalized self-care planning, emergency and end of life (EOL) preparedness, and peer support to improve the well-being, resource access and social connectedness of caregivers with disabilities. For this study we are interested in caregivers over the age of 18 who have some form (e.g. mobility or sensory) disability and are caring for a person with a disability and/or a chronic illness.
Eligibility criteria
Qualifiers
18 years of age and older,
Community dwelling in the state of Maryland,
Self report of physical or sensory disability and
self-report of serving as a family caregiver for a person for at least 10 hours/week.
Disqualifiers
have a terminal diagnosis (<1 year expected survival), and
> severe cognitive impairment (5-7 errors) based on the Short Portable Mental Status Questionnaire (SPMQ)
Trial design
Treatments tested in this trial
- BALANCE Building Active LIving and Addressing Needs for Caregiver Empowerment
Treatment groups
20 Participants
are divided into 1 treatment groupSponsors and collaborators
Johns Hopkins University
Lead sponsor
National Institute on Disability, Independent Living, and Rehabilitation Research
Collaborator
Source ClinicalTrials.gov