Supportive Care Needs of Caregivers of People With Erdheim-Chester Disease and Other Histiocytic Diseases

ConditionSupportive Care Needs of Caregivers

Trial statusRecruiting

Trial phaseNot listed

Trial typeObservational

Biological sexAll

Age18+

SponsorMemorial Sloan Kettering Cancer Center

About this trial

This study is being done to answer the following question: What are the supportive care needs of informal caregivers of people with Erdheim-Chester disease and other histiocytic diseases?

Eligibility criteria

Qualifiers

Self-identified informal caregiver (family member or friend who provides unpaid support) for a patient with Erdheim-Chester Disease (or LCH, RDD, or JXG for the exploratory aim).

Proficiency to complete study assessments in English, evaluated at the time of consent.

Age 18 or over.

Disqualifiers

Participant unwilling to sign consent.

Participant unable to complete web-based assessments.

Trial design

Treatments tested in this trial

online surveys

Treatment groups

250 Participants

are divided into 1 treatment group

Sponsors and collaborators

Memorial Sloan Kettering Cancer Center

Lead sponsor

Source ClinicalTrials.gov