[{"data":1,"prerenderedAt":-1},["ShallowReactive",2],{"health-studies-list:{\"overallStatus\":[\"RECRUITING\",\"AVAILABLE\",\"NOT_YET_RECRUITING\"],\"leadSponsorName\":\"Sarah Schlegel\",\"orderBy\":\"LastUpdateSubmitDate:desc\",\"size\":25,\"offset\":0}":3,"health-study-condition:":63},{"pageToken":4,"total":5,"offset":6,"count":5,"results":7},null,1,0,[8],{"id":9,"slug":4,"hasResults":10,"nctId":11,"briefTitle":12,"officialTitle":12,"acronym":4,"eligibilityCriteria":13,"healthyVolunteers":14,"sex":15,"minAge":16,"maxAge":4,"enrollmentInfo":17,"targetDuration":4,"studyType":20,"phases":21,"briefSummary":23,"conditions":24,"keywords":27,"overallStatus":51,"whyStopped":4,"lastUpdateSubmitDate":52,"lastUpdatePostDateStruct":53,"startDateStruct":56,"completionDateStruct":58,"leadSponsor":60,"locationsCount":5},"100592143",false,"NCT06989593","Breaking Silence Through Story: A Narrative Medicine Intervention for Parents of Children With Urogenital Conditions","Inclusion Criteria:\n\n* Parent or legal guardian of a child (age 0-17 years) diagnosed with a urogenital condition (such as differences of sex development or hypospadias)\n* Able to read and understand English\n* Willing to complete a guided journaling intervention (through writing or dictation) over a period of approximately 5 weeks\n* Willing to participate in a 45 minute follow-up interview\n* Able to provide informed consent\n\nExclusion Criteria:\n\n* Parent\u002Fguardian with severe psychiatric disorder that would interfere with participation as determined by referring physician\n* Parent\u002Fguardian unable to complete either written journaling activities or dictation\n* Inability to provide informed consent",true,"ALL","18 Years",{"count":18,"type":19},20,"ESTIMATED","INTERVENTIONAL",[22],"NA","The goal of this clinical trial is to learn whether a journaling intervention can reduce stress and anxiety in parents of children with urogenital conditions (such as differences of sex development and hypospadias).\n\nThe main questions it aims to answer are:\n\n* Does guided journaling help to reduce anxiety levels in parents of children with urogenital conditions?\n* What are parents' perspectives on group-based writing interventions for future support programs?\n\nParticipants will:\n\n* Complete a short anxiety questionnaire (the General Anxiety Disorder-7 scale) at the beginning of the study\n* Receive a physical journal with 5 writing prompts designed to help process emotions related to their child's condition\n* Complete 5 journal entries over several weeks, writing about their experiences and feelings\n* Complete the same anxiety questionnaire again after finishing the journal entries\n* Participate in a 45-minute interview to discuss how the journaling affected their stress levels and gather feedback on potential group-based writing programs",[25,26],"DSD","Hypospadias",[28,26,29,30,31,32,33,34,35,36,37,38,39,40,41,42,43,44,45,46,47,48,49,50],"Disorders of Sex Development","Anxiety","Stress, Psychological","Parents","Psychological Adaptation","Writing","Narrative Therapy","Qualitative Research","Patient Participation","Social Support","Mental Health","Interpersonal Relations","Parent-Child Relations","Urogenital Abnormalities","Female Urogenital Diseases","Urogenital Diseases","Penile Diseases","Genital Diseases, Male","Genital Diseases","Male Urogenital Diseases","Congenital Abnormalities","Gonadal Disorders","Endocrine System Diseases","RECRUITING","2026-05-14",{"date":54,"type":55},"2026-05-18","ACTUAL",{"date":57,"type":55},"2025-10-10",{"date":59,"type":19},"2026-11",{"name":61,"class":62},"Sarah Schlegel","OTHER",""]