[{"data":1,"prerenderedAt":-1},["ShallowReactive",2],{"health-studies-list:{\"conditionNormalized\":\"mitochondrial-membrane-protein-associated-neurodegeneration-mpan\",\"overallStatus\":[\"RECRUITING\",\"AVAILABLE\",\"NOT_YET_RECRUITING\"],\"orderBy\":\"LastUpdateSubmitDate:desc\",\"size\":25,\"offset\":0}":3,"health-study-condition:mitochondrial-membrane-protein-associated-neurodegeneration-mpan":50},{"pageToken":4,"total":5,"offset":6,"count":5,"results":7},null,1,0,[8],{"id":9,"slug":4,"hasResults":10,"nctId":11,"briefTitle":12,"officialTitle":13,"acronym":14,"eligibilityCriteria":15,"healthyVolunteers":10,"sex":16,"minAge":4,"maxAge":4,"enrollmentInfo":17,"targetDuration":20,"studyType":21,"phases":4,"briefSummary":22,"conditions":23,"keywords":35,"overallStatus":37,"whyStopped":4,"lastUpdateSubmitDate":38,"lastUpdatePostDateStruct":39,"startDateStruct":42,"completionDateStruct":44,"leadSponsor":46,"locationsCount":49},"100479391",false,"NCT05522374","TIRCON International NBIA Registry","TIRCON International NBIA (Neurodegeneration Associated With Brain Iron Accumulation) Patient Registry and Natural History Study","TIRCON","Inclusion Criteria:\n\n* suspected or confirmed NBIA\n* willingness to participate\n\nExclusion Criteria:\n\n* unwillingness to participate","ALL",{"count":18,"type":19},2000,"ESTIMATED","30 Years","OBSERVATIONAL","TIRCON-reg aims to\n\n* continue the provision of a global registry and natural history study for NBIA disorders\n* harmonize and cover existing national and single site registries\n* enable participation of countries and single sites that so far have no access to an NBIA registry\n* join forces in order to recruit sufficient numbers of patients\n* define the natural history of NBIA disorders\n* define the most appropriate outcome measures\n* inform the design and facilitate the conduction of clinical trials",[24,25,26,27,28,29,30,31,32,33,34],"Neurodegeneration With Brain Iron Accumulation (NBIA)","Pantothenate Kinase-associated Neurodegeneration (PKAN)","Beta-Propeller Protein-Associated Neurodegeneration (BPAN)","Mitochondrial Membrane Protein Associated Neurodegeneration (MPAN)","Fatty Acid Hydroxylase-associated Neurodegeneration (FAHN)","Kufor Rakeb Syndrome","Neuroferritinopathy","Aceruloplasminemia","Woodhouse Sakati Syndrome","COASY Protein-associated Neurodegeneration (CoPAN)","PLA2G6-Associated Neurodegeneration (PLAN)",[36],"NBIA, PKAN, BPAN, MPAN, FAHN, KRS, CoPAN, PLAN,","RECRUITING","2025-06-02",{"date":40,"type":41},"2025-06-05","ACTUAL",{"date":43,"type":41},"2012-06-14",{"date":45,"type":19},"2040-12",{"name":47,"class":48},"LMU Klinikum","OTHER",9,""]